FARE Opposes California’s Allergen Menu Bill—Then Backs It. What It Means for Our Community

In early April 2025, Food Allergy Research & Education (FARE) made headlines—but not in a way that inspired confidence.

A Tale of Two Positions

The organization, one of the most prominent in the food‑allergy advocacy world, publicly opposed California’s Senate Bill 68 (the Allergen Disclosure for Dining Experiences Act, or ADDE). The bill, introduced by State Senator Caroline Menjivar and championed by 9-year-old Addie Lao, would require restaurants to clearly label the top nine food allergens—milk, eggs, fish, shellfish, peanuts, tree nuts, wheat, soy, and sesame—on menus starting July 1, 2026.

FARE’s stated concern? That requiring static menu labeling could create a false sense of security—lulling diners into thinking labels are enough protection, while ignoring cross-contact risk, frequent ingredient changes, and real-life complexities in restaurant kitchens.

Two months later, the situation dramatically changed. Following bill amendments made in collaboration with the Asthma and Allergy Foundation of America (AAFA) and other advocates, FARE reversed course and announced support for the bill on July 18. It was a remarkable about-face—and one that opened a flood of questions, criticism, and opportunity.


Understanding the Positions

Why FARE Initially Opposed SB 68

From their April letter, FARE articulated several clear concerns:

  • Static labeling falls short: FARE highlighted that menu labels can’t account for dynamic, real-world factors like ingredient substitutions or shared prep surfaces.
  • Risk of exclusion: They worried that compliance burdens could push smaller restaurants to drop allergy accommodations altogether.
  • Lack of collaboration: Even FARE’s leadership acknowledged they weren’t part of early stakeholder discussions. Their request for a collaborative amendment window was denied—or at least not received in time.
  • Time crunch: With a July 2026 implementation deadline, FARE said the timeline was unrealistic—especially given training needs and operational changes.

It’s worth noting that FARE wasn’t alone in voicing concerns; the California Restaurant Association (CRA) joined them in opposing the bill, citing cost, logistical burdens, and liability reasons AP News.

The Case For SB 68

By contrast, SB 68 was backed by multiple major voices in the food allergy advocacy space—AAFA, ACAAI, FAACT, FANA, and others—as well as SnackSafely.com, which editorially supported the measure as “life‑saving”.

The arguments were simple and compelling:

  • No existing federal or state regulation requires restaurants to list allergens, even though packaged foods must under FALCPA.
  • Statistics are alarming: nearly half of fatal allergic reactions originate from restaurant or food-service meals.
  • Dining out is a daily minefield—anything that adds clarity at the point of order offers real, incremental safety.
  • And research suggests that allergy-aware restaurants can benefit commercially: customers with food allergies tend to be very loyal, with 36% reporting they always return to safe places, versus 17% of other diners,

What Shifted—and Why FARE Now Supports SB 68

In June, the ADDE bill moved forward through California’s Assembly Appropriations Committee, incorporating significant amendments that addressed many of FARE’s concerns:

  • Digital labeling and allergen-specific menus: Added flexibility for restaurants to provide allergen info in printed or online forms.
  • Stakeholder collaboration: The amendments were crafted with input from AAFA, Addie Lao’s family, restaurant owners, legislators, and FARE.
  • More workable implementation: Adjustments eased burden and improved feasibility for both small and large operators while preserving safety intent.

As a result, FARE shifted to support the bill, with its CEO stating that “FARE has always supported the intent of the bill” but recognized that it needed to be strengthened to work in real-world settings.


Community Response: Disappointment and Frustration

The initial opposition by FARE sparked strong reactions:

“FARE… is actively working against a bill that would increase transparency and help people with allergies make safer, more informed choices.”
“Their reasoning? That allergen labeling might create a ‘false sense of security.’ … This is offensive and out of touch … a betrayal of the very people they claim to represent.”
Reddit

These sentiments, echoed in social media and community forums, reflect real fear and frustration. Families don’t need philosophical labeling debates—they need practical, tangible safety tools.


What This Means for the Food Allergy Community

Real-World Safety Wins

Menu labeling may not be perfect—but it’s a clear improvement over the status quo, where allergic diners are forced to ask, probe, and pray every time they order. Labels don’t replace conversation—but they reduce uncertainty at the moment most vulnerable.

Systemic Progress and Standards

If SB 68 passes, California would become the first state to mandate this level of transparency. That sets a powerful precedent, pushing us closer to national standards that protect all allergic diners.

Innovation and Dynamism

FARE’s concern about static labeling isn’t wrong—but shouldn’t be a reason to stall progress. Instead, this shift highlights the hybrid path forward: baseline labeling plus technology-enhanced updates, better training, digital tools, and proactive monitoring. Both approaches can coexist—and should.

Lessons in Advocacy

FARE’s reversal shows how powerful stakeholder engagement is. When adjusted collaboratively, a bill that felt exclusionary can become inclusive—and acceptable. It’s a reminder to stay involved, speak up, and push for better, not less.


Where the Bill Stands Now

  • SB 68 cleared the Senate Health Committee unanimously, and moved forward with the updated, more flexible structure.
  • It’s currently awaiting a scheduled hearing in the Assembly Appropriations Committee, where AYFA and other advocates continue to lobby.
  • If passed, the law would go into effect on July 1, 2026, giving restaurants time to adapt.
  • The legislative process continues; advocates remain vigilant to ensure language doesn’t weaken core protections.

Final Thoughts: Guarding Against Both Overconfidence and Inaction

FARE’s reversal underscores a difficult truth: we must balance ideal solutions with immediate safety gains.

  • Yes, cross-contact risk remains—even in labeled menus—but labeling is one critical layer of protection, especially in emergencies.
  • Yes, technology-enhanced systems and dynamic updates can be more accurate—but they’re not yet universal. While we build toward that, static menus offer something solid.
  • Advocacy is never about choosing one right path—it’s about shaping the best possible path sooner.

Call to Action

If you’re part of our food-allergy community—students, parents, educators, friends—here’s how you can help:

  1. Speak up now: Contact your California Assembly members and ask them to pass SB 68 in its strengthened form.
  2. Amplify Addie’s message: Share her story—this isn’t just policy; it’s deeply personal.
  3. Encourage innovation: Demand that labeling standards be paired with training, digital upgrades, and clear cross-contact protocols.
  4. Stay engaged nationally: California’s progress paves the way for other states. Let’s use this moment to push for broader change.

In Summary

California’s SB 68 could be a landmark law—an overdue step toward restaurant accountability that many families need. FARE’s initial opposition shook us, but their support following amendments shows the power of reform over rupture.

Let’s keep pushing for food allergy safety—with clarity, collaboration, and compassion. Because labeling may not be perfect—but it’s an essential bridge toward a safer, more inclusive table for everyone.

Find Food Allergy Aware Colleges and Universities

For so many of us in the food allergy and celiac community, the word college stirs up a strange mix of excitement and fear. On one hand, it’s the launchpad for independence, learning, and lifelong friendships. On the other, it’s a minefield: navigating dining halls, dorm kitchens, late-night study snacks, and campus events where food is everywhere.

Until now, figuring out how supportive a school would be for students with food allergies or celiac disease meant hours of research, countless phone calls, and often relying on word of mouth. But that just changed in a big way.

FARE (Food Allergy Research & Education) has launched the Food Allergy College Search — the first and only tool that lets you search U.S. colleges and universities by their food allergy and celiac accommodations. You can explore it right now at college.foodallergy.org.

This is huge news for students, caregivers, and educators. Let’s break down why this matters, what the directory offers, and how you can use it to make smarter, safer college choices.


Why Choosing the Right College Is Extra Hard with Food Allergies

Picture the typical student heading off to college: new dorm, new roommates, late nights in the library, weekends exploring campus life. Now add the reality of severe food allergies or celiac disease. Suddenly, normal college stress collides with life-or-death questions like:

  • Will the dining hall have safe options I can eat every day?
  • What if my friends order pizza to the dorm—can I trust that it’s safe?
  • Does the health center know how to respond to anaphylaxis?
  • If I need epinephrine, will campus staff know what to do?

For many families, these questions overshadow everything else about the college search. Academic programs, scholarships, and sports teams matter, of course. But if you can’t eat safely, it’s hard to focus on calculus or creative writing.

Until now, families often had to call each school individually, hoping to connect with someone in dining services or student accessibility. Some schools had robust programs, while others barely understood the needs. It was a patchwork, with no central place to compare.

That’s why this new tool from FARE is such a breakthrough.


What Is the Food Allergy College Search?

Think of it as a one-stop directory for food allergy and celiac awareness on U.S. campuses. Here’s what it brings to the table:

1. Searchable Database

You can browse colleges and universities across the country and filter by the accommodations that matter most to you. Instead of starting from scratch at every campus website, you can now compare schools side by side.

2. Dining Options

Learn how each school’s dining services handles food allergies and celiac disease: dedicated kitchens, allergen labeling, cross-contact prevention, gluten-free options, and staff training.

3. Emergency Protocols

Does the campus have clear procedures for anaphylaxis? Are staff trained in epinephrine administration? How close is emergency medical support?

4. Student Services

Find out what offices or departments support students with dietary needs, from disability accommodations to peer support groups.

5. Consistency Across the Map

This tool creates a level playing field for students. Instead of guessing, you can see which colleges take allergies and celiac seriously, and which may need more advocacy.


Why This Matters for Students and Families

Peace of Mind for Parents

Sending your child off to college is emotional enough. Add severe allergies, and it can feel terrifying. This directory offers a starting point for confidence: you’ll know whether the school has systems in place before you write the deposit check.

Empowerment for Students

For teens with allergies or celiac, the transition to college is a crash course in independence. Having a trusted resource means students can take ownership of their search, ask informed questions on campus tours, and advocate for themselves.

Support for Schools

This isn’t just about families—it’s about campuses too. Schools can use the directory to benchmark their policies, see how they compare, and identify gaps in student support. The more schools that engage, the better the future looks for everyone.


A Day in the Life: Imagining the Difference

Let’s put this in perspective with two scenarios.

Without the FARE directory:
Maya, a high school senior with severe nut allergies, spends hours researching colleges. Each website feels vague. She and her parents cold-call five schools, getting transferred from admissions to housing to dining to health services. Some staff are helpful, but others don’t seem to understand her questions. By the end, Maya feels exhausted and uncertain.

With the FARE directory:
Maya plugs her preferences into the Food Allergy College Search. Within minutes, she’s narrowed her list to ten schools with strong dining safety protocols and trained emergency staff. She brings the list to her college counselor, who helps her evaluate academic fit alongside allergy safety. When she tours campuses, she already knows what questions to ask and which offices to visit.

Same student, totally different journey.


How to Use the Directory in Your Search

Here are a few practical steps if you or your student are starting the college process:

  1. Visit college.foodallergy.org
    Explore the database and bookmark schools that stand out.
  2. Make a Two-Column List
    On one side, jot down your academic “must-haves.” On the other, list your food allergy or celiac “must-haves.” Use the directory to see which schools hit both lists.
  3. Prepare Questions for Tours
    Even if a school looks great on paper, in-person conversations matter. Ask dining staff about cross-contact, or the health center about epinephrine response.
  4. Connect with Current Students
    If possible, talk to students who are already managing food allergies or celiac at that school. They’ll give you the inside scoop.
  5. Don’t Be Afraid to Advocate
    If your dream school isn’t perfect yet, use this tool as a conversation starter. Sometimes schools improve when they realize how much prospective students care.

Looking Ahead

FARE’s Food Allergy College Search is more than just a directory. It’s a milestone in recognizing that food allergies and celiac disease are serious medical conditions that deserve structured, transparent accommodations.

The more families use this tool, the more pressure schools will feel to improve—and the more confident students will feel about leaving home. In time, we may see stronger national standards for allergy and celiac safety across higher education.

For now, this is an incredible step forward.


Final Thoughts

If you’re a student with food allergies or celiac disease—or the parent of one—the college journey no longer has to be such an uncertain leap of faith.

With the Food Allergy College Search, you can compare schools not just by their academics and sports teams, but by the safety, dignity, and peace of mind they offer every day in the cafeteria, dorm, and classroom.

Big news? Absolutely. Game-changer? Without a doubt.

Start your search today at college.foodallergy.org, and take one giant step closer to a safer, more empowering college experience.